Effective use of patient-generated health data (PGHD) in clinics poses many challenges, including clinician and patient burden, poor usability, workflow integration challenges, and the potential to make health inequities worse.
To promote the collection, integration, and use of PGHD in clinical care, the Agency for Healthcare Research and Quality (AHRQ) developed a guide that has evidence-based, practical steps for implementation.
This guide is created to support ambulatory care settings of all types in the design and implementation of successful PGHD programs.
About the Guide
The guide is organized into six folios that help ambulatory care practices navigate the many steps from design, to launch, to maintenance of a successful, sustainable PGHD program.
How to Use the Guide
The success of a PGHD program will be linked to the capacity and interests of a practice’s staff, and the unique needs and preferences of patients. PGHD programs are likely to differ greatly across practices.
The content of this guide is designed to support each practice’s unique journey and includes pick-and-choose content you can tailor for your specific needs.
To make learning more meaningful, consider applying data from your own practice to inform decisions and develop practical solutions to real challenges. Use real-life examples and patient stories to inform your decisions around the design and implementation of your program.
The guide was developed based on findings and recommendations from Integrating Patient-Generated Digital Health Data into Electronic Health Records in Ambulatory Care Settings: An Environmental Scan.
Acknowledgements
Creation of this guide was led by the Oregon Health & Science University under the direction of Deborah Cohen as an AHRQ-funded project. The partners for this work included Duke University, OCHIN, and Technical Expert Panel members.