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How Discrimination in Health Care Affects Older Americans, and What Health Systems and Providers Can Do

Nurse gives vaccine to masked patient in arm chair

Nurse Carla Brown administers a COVID-19 vaccine dose to Maxine Moses, 92, on Aug. 17, 2021, in Baton Rouge, La. Older adults in the U.S. are more likely to report perceiving racial and ethnic discrimination in the health system, compared with peers in 10 other high-income countries. Photo: Mario Tama via Getty Images

Nurse Carla Brown administers a COVID-19 vaccine dose to Maxine Moses, 92, on Aug. 17, 2021, in Baton Rouge, La. Older adults in the U.S. are more likely to report perceiving racial and ethnic discrimination in the health system, compared with peers in 10 other high-income countries. Photo: Mario Tama via Getty Images

Toplines
  • One in four older adults of color say that they have experienced racial or ethnic discrimination in the U.S. health care system, a new Commonwealth Fund report finds

  • Older adults reporting health care discrimination are more likely to report being in poor health, suffering economic hardship, and being dissatisfied with their care

Toplines
  • One in four older adults of color say that they have experienced racial or ethnic discrimination in the U.S. health care system, a new Commonwealth Fund report finds

  • Older adults reporting health care discrimination are more likely to report being in poor health, suffering economic hardship, and being dissatisfied with their care

Racial and ethnic discrimination has a significant impact on the health of people of color, affecting mental health and contributing to high blood pressure, negative health behaviors, and early aging.1 For Black older adults, the cumulative effects of race-related stress experienced over the course of a life can increase the risk for mental and physical health problems.2

In health care settings, experiences of discrimination can include providers dismissing a patient’s symptoms or health concerns, offering different treatment based on a patient’s type of insurance,3 or not providing care in a patient’s preferred language.4

We analyzed findings from the Commonwealth Fund 2021 International Health Policy Survey of Older Adults to examine experiences of racial discrimination in health care settings among Latinx/Hispanic and Black older adults. (See “How We Conducted This Study” for more details.) To provide some cross-national context, we first detail the extent to which older adults in 11 high-income countries believe their national health system treats people unfairly because of race or ethnicity. We then look more in-depth at the United States and report on older Americans’ experiences of discrimination and the consequences of health providers’ unfair or dismissive treatment.5 Finally, we consider steps that U.S. health system leaders, health care educators, policymakers, and others can take to address discrimination and dismantle systemic racism in health care.

Highlights

  • Older adults in the United States are more likely to report racial and ethnic discrimination in the health system exists, compared with their peers in 10 other high-income countries.
  • In the U.S., one in four Black and Latinx/Hispanic adults age 60 and older reported that they have been treated unfairly or have felt that their health concerns were not taken seriously by health professionals because of their racial or ethnic background.
  • More than a quarter of U.S. older adults said they did not get the care or treatment they felt they needed because of discrimination.
  • U.S. older adults who have experienced discrimination in a health care setting were more likely to have worse health status, face economic hardships, and be more dissatisfied with their care than those who did not experience discrimination.

 

Findings

Doty_racial_ethnic_discrimination_older_adults_Exhibit_01

Looking across 11 high-income countries, one in three older adults in the U.S. said they believe their health system treats people differently because of their race or ethnicity, nearly double the rate of older adults in Canada (17%).

Doty_racial_ethnic_discrimination_older_adults_Exhibit_02

In the United States, Black women and men are the most likely of any group to believe the health care system very often or often treats people differently because of their race or ethnicity. Across racial and ethnic groups, more women than men hold this view.

Doty_racial_ethnic_discrimination_older_adults_Exhibit_03

When asked whether they have ever been treated unfairly or felt that their health concerns were not taken seriously because of their racial or ethnic background, one in four Black and Latinx/Hispanic older adults in the U.S. said they have experienced this type of discrimination, approximately eight times the rate for older white adults. There were not significant differences by gender between racial or ethnic groups.6

Doty_racial_ethnic_discrimination_older_adults_Exhibit_04

More than a quarter (27%) of all U.S. older adults who experienced race- or ethnicity-based discrimination — either their provider treated them unfairly or dismissed their health concerns because of their race or ethnicity — said they did not receive the care they felt they needed.7 Previous research on older adults of color found that perceived discrimination was associated with an increased risk of avoiding or delaying care, in part because doctors may communicate messages that discourage appropriate use of health services.8

Doty_racial_ethnic_discrimination_older_adults_Exhibit_05

The majority (61%) of U.S. older adults who said that they experienced discrimination based on their race or ethnicity were Black or Latinx (data not shown). Nearly half of those who experienced such discrimination reported being in fair or poor health, twice the rate of those who did not experience discrimination. In fact, three-quarters of adults who have felt discriminated against have three or more chronic conditions or need help with daily activities (data not shown). Older adults who have faced discrimination based on their race or ethnicity are also significantly more likely to feel socially isolated, have a mental health diagnosis, and experience a material hardship (always or usually feeling stressed about having enough money to pay for food, housing, or monthly bills).

Older adults who have felt discriminated against when receiving care are significantly more likely to be dissatisfied with the quality of their care than those not reporting discrimination.9 More than four in 10 respondents who reported discrimination said they are somewhat or not at all satisfied, about double the rate for those who did not report discrimination.

Consistent with previous research, older Black and Latinx/Hispanic adults are more likely than older white adults to report being in fair or poor health and to experience material hardships (data not shown).

Policy Recommendations

Battling discrimination throughout the health care system is imperative to advancing health equity. Given that older adults use far more health care services than do younger people, and that the U.S. population is rapidly aging, addressing discrimination in health care settings is especially important for older adults of color. Ending discrimination and racism in health care begins with recognizing it and then actively working to dismantle it. Following are recommendations for spurring and supporting such efforts.

Promote transparency and accountability by identifying instances of discrimination and publicly reporting discrimination data. One way is to provide patients with the opportunity to report experiences of racism or other types of discrimination when completing standard patient satisfaction surveys. Health care organizations could expand existing patient experience surveys to ask about discrimination, bring these reports to the attention of system leaders, and identify opportunities for improvement. To promote accountability, health care organizations also could be required to publicly report responses.

Older adults of color, particularly those with health concerns, have many interactions with health personnel. Allowing them opportunities to reflect on how they were treated and to report their experiences with discrimination are important steps.

Develop medical school curricula to educate students about how the U.S. health care system has harmed patients of color and other historically marginalized communities. Studies have shown that medical students’ perceptions of race and implicit biases, together with false ideas of race-based biological differences, can affect their treatment recommendations for patients of color.10 The same is true for older patients: when medical students are exposed only to the sickest older patients in their training, they may adopt stereotypical thinking that affects treatment.11 To encourage their students to address bias, medical schools could teach the history of racism in the health system, institute implicit-bias training, and ensure that race is understood as a risk marker, not necessarily a risk factor, for health outcomes.12

Examine how current policies enable discrimination and then remove or reform those policies. Understanding how federal, state, and health care organizations’ policies and care delivery approaches enable discrimination and racism is an important step in diagnosing and treating racism in the health system at large.13 The National Academies of Sciences, Engineering, and Medicine is currently reviewing federal policies that promote health disparities, but private institutions could also systematically review their policies and practices to determine if and how they harm persons of color.14

Address the lack of diversity in the U.S. health care workforce. A diverse health care workforce can help promote the cultural competency of providers and improve access to health care, since providers of color are more likely to work in underserved communities, including those with large elderly populations.15 Providers whose racial or ethnic background reflects that of their patients can also engender greater trust. To foster diversity, medical schools could show how they are seeking to improve diversity among faculty and students, evaluate the diversity and experiences of those on recruitment committees, and target community colleges, historically Black colleges and universities, and Hispanic-serving institutions in their recruitment.16

Provide culturally and contextually appropriate care that addresses patients’ communication needs and preferences. All patients should have the opportunity to receive care the reflects their cultural values and language needs. To provide such care, organizations can offer translation services and create medical forms in multiple languages and provide cultural competency training to staff.17 Organizations also could work with the communities they serve to ensure care delivery reflects the needs and preferences of the community.

By taking these steps, health care organizations can do their part to address discrimination against older and younger adults alike to improve health equity and outcomes.

HOW WE CONDUCTED THIS STUDY

The Commonwealth Fund 2021 International Health Policy Survey of Older Adults was conducted from March 1 to June 14, 2021, by SSRS, a U.S. survey research firm, and contractors in the other countries. The survey was administered to a nationally representative sample of adults age 60 and older in the United States from March 11 to May 27, 2021. The survey was also administered to adults age 65 and older in Australia, Canada, France, Germany, the Netherlands, New Zealand, Norway, Sweden, Switzerland, and the United Kingdom.

The final U.S. sample was 1,969. Interviews were completed either online or using computer-assisted telephone interviews. Samples were generated using probability-based overlapping landline and mobile phone sampling designs. Both mobile and landline telephone numbers were included to improve representativeness. For landline samples, standard within-household selection procedures were used to increase the likelihood of reaching an eligible respondent.

A common questionnaire was developed, translated, adapted, and adjusted for country-specific wording as needed. Interviewers were trained to conduct interviews using a standardized protocol. The U.S. response rate was 11.2 percent.

International partners joined with the Commonwealth Fund to sponsor surveys, and some countries supported the use of expanded samples to enable within-country analyses. Data were weighted to ensure that the final outcome was representative of the adult population in each country. Weighting procedures considered the sample design, probability of selection, and systematic nonresponse across known population parameters including region, sex, age, education, and other demographic characteristics deemed consistent with standards for each country. In the United States, the weighted variables also included race and ethnicity.

The margin of sample error for the 2021 International Health Policy Survey of Older Adults was approximately +/– 2 percent for the U.S., at the 95 percent confidence interval.

NOTES
  1. David R. Williams et al., “Understanding How Discrimination Can Affect Health,” Health Services Research 54, suppl. 2 (Dec. 2019): 1374–88; and Brigette A. Davis, “Discrimination: A Social Determinant of Health Inequities,” Health Affairs Blog, Feb. 25, 2020.
  2. Williams et al., “Understanding How Discrimination,” 2019.
  3. Paige Nong et al., “Patient-Reported Experiences of Discrimination in the U.S. Health Care System,” JAMA Network Open, published online Dec. 15, 2020.
  4. Leslie R.M. Hausmann et al., “Perceived Racial Discrimination in Health Care and Its Association with Patients’ Healthcare Experiences: Does the Measure Matter?,” Ethnicity & Disease 20, no. 1 (Winter 2010): 40–47.
  5. Questions related to experiencing unfair or dismissive treatment and the consequences of discrimination were asked in the U.S. only. The U.S. sample included adults age 60 and older; respondents who self-identified as Asian American or another racial or ethnic group were not included in this study because of limited sample sizes.
  6. Black and Latinx/Hispanic adults make up most older adults (61%) in the U.S. who reported discrimination, yet these adults comprise only 19 percent of the survey population. Sample size of respondents who reported discrimination (N=149) is too small to stratify the analysis by race and ethnicity.
  7. Sample sizes for this item were too small to stratify by race and ethnicity.
  8. Taeho Greg Rhee et al., “Impact of Perceived Racism on Healthcare Access Among Older Minority Adults,” American Journal of Preventive Medicine 56, no. 4 (Apr. 2019): 580–85.
  9. In regression analysis, the effects of discrimination remained even after controlling for health status, race/ethnicity, and gender.
  10. Kelly M. Hoffman et al., “Racial Bias in Pain Assessment and Treatment Recommendations, and False Beliefs About Biological Differences Between Blacks and Whites,” Proceedings of the National Academy of Sciences 113, no. 16 (Apr. 19, 2016): 4296–301; Alan Nelson, “Unequal Treatment: Confronting Racial and Ethnic Disparities in Health Care,” Journal of the National Medical Association 94, no. 8 (Aug. 2002): 666–68; and Josh Serchen et al., Understanding and Addressing Disparities and Discrimination in Education and in the Physician Workforce (American College of Physicians, 2021).
  11. Lindsay Kalter, “Not the Same Old, Same Old,” AAMC News, Association of American Medical Colleges, Jan. 17, 2019.
  12. Elizabeth Lawrence, “What Doctors Aren’t Always Taught: How to Spot Racism in Health Care,” Kaiser Health News, Nov. 17, 2020; and White Coats for Black Lives, Racial Justice Report Card 2020–2021 (WC4BL, 2021).
  13. Martha Hostetter and Sarah Klein, “Confronting Racism in Health Care: Moving from Proclamations to New Practices,” feature article, Commonwealth Fund, Oct. 18, 2021.
  14. National Academies of Sciences, Engineering, and Medicine, “Review of Federal Policies That Contribute to Racial and Ethnic Health Inequities,” 2022.
  15. Samantha Artiga et al., COVID-19 Risks and Impacts Among Health Care Workers by Race/Ethnicity (Henry J. Kaiser Family Foundation, Nov. 2020); Sara N. Bleich, Laurie Zephyrin, and Robert J. Blendon, “Addressing Racial Discrimination in U.S. Health Care Today,” JAMA Health Forum 2, no. 3 (Mar. 5, 2021): e210192; and Jordan J. Cohen, Barbara A. Gabriel, and Charles Terrell, “The Case for Diversity in the Health Care Workforce,” Health Affairs 21, no. 5 (Sept./Oct. 2002): 90–102.
  16. James P. Guevara, Roy Wade, and Jaya Aysola, “Racial and Ethnic Diversity at Medical Schools — Why Aren’t We There Yet?,” New England Journal of Medicine 385, no. 19 (Nov. 4, 2021): 1732–34.
  17. Serchen et al., Understanding and Addressing Disparities, 2021.

Publication Details

Date

Contact

Michelle M. Doty, Vice President, Organizational Effectiveness, Survey Research and Evaluation, The Commonwealth Fund

[email protected]

Citation

Michelle M. Doty et al., How Discrimination in Health Care Affects Older Americans, and What Health Systems and Providers Can Do (Commonwealth Fund, Apr. 2022). https://doi.org/10.26099/yffm-2x15